We endeavour to save lives and improve the quality of life of patients with severe and rare diseases throughout the world. Quality of life often also includes contact with others who are similarly affected. We therefore support patient organisations in the development of specific programmes and activities for patients with rare diseases; our goal is to promote the awareness and importance of these little-known diseases. In addition, we use our experience with patients and their families to implement our own programmes. We also work untiringly with the authorities, explaining the particular needs of patients with rare diseases and creating understanding so that patients can get the best possible medical care and therapy.